Virtual 5k for 5p-

  • 05.09.2015 @ 12:00 AM
  • Wherever you want, California
Danielle Karcz's Fundraising Page
Hi everyone, I am participating in the Virtual 5K for the 5P- Society. As many of you know my son Peyton has cri du chat syndrome, the 5P- Society helps families with kids like Peyton with support, awareness and research. I attended my first conference the summer of 2013 in Long Island and we are planning on attending this summer's conference in Indianapolis. These conference help families connect with other families and provide workshops with specialists.
The Virtual 5K is being help the week of International Cri Du Chat week (May 3 - May 9) across the US. No donation is too small.
Thanks!
Danielle
Funds Raised
$200 / $500 (40%)
Help us get to our goal
Non-Profit Information
About Virtual 5k for 5p-
Each year in the United States, approximately 50 to 60 children are born with 5p- Syndrome (five p minus), also known as Cat Cry Syndrome or Cri du Chat Syndrome. 5p- Syndrome is characterized at birth by a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of chromosome number five that is missing in these individuals. 5p deletion is a spectrum disorder. Founded in 1986, the 5p- Society's mission is to encourage and facilitate communication among families having a child with 5p- Syndrome and also to spread awareness and education of the syndrome to these families and their service providers. As the society continues to forge a path ahead for the awareness, advocacy, and support of our families with Cri Du Chat, we continue to need financial support. The financial support that the society gains will allow more families to be touched positively as our loved ones grow and develop. Your support and participation in the Virtual 5k for 5p- is appreciated! The 5p- Society is a recognized 501(c)3 not-for-profit organization.
Next Steps to Donate or Fundraise
My Donators!
Carey
$25.00
The Pescatore Family
$50.00
Kelly
$25.00
: )
Cheryl Houghton
$25.00
Good Luck
Michelle Ellis Hazen
$50.00
Rock it Rookie!
Jen Rydeen
$25.00
So happy to support you!