Sometimes the most beautiful blessings come when you're least expecting it!
Jayci (now 7) was born June 28, 2007 - a day that completely changed our lives! Although something always felt a little off, I wasn't at all prepared for the news that I was about to get. We spent 3 weeks in the NICU before Jayci was officially diagnosed with Cri du Chat Syndrome. I had never heard of it and had no clue what it meant for Jayci. I spent numerous hours trying to research 5p- and yet it was so rare, I was only able to get the basic information. We are still learning so much to this day.
Jayci's Cri du Chat Syndrome was determined through genetic testing to be spontaneous, meaning neither parent carried the gene and it just happened. In our eyes, this makes Jayci even more rare and a blessing to our family! She is tiny, stubborn, and the most beautiful little princess! She has taught us more in the short 7 years she's been on Earth than a lifetime of research could ever do!