Virtual 5k for 5p-

  • 05.09.2015 @ 12:00 AM
  • Wherever you want, California
Lisa Hardey's Fundraising Page
I am participating in a Virtual 5K to raise money on behalf of a beautiful little girl named Caroline, the granddaughter of my dear friend Jeannie Woodley. Caroline was born with Cri du Chat Syndrome: a rare genetic disorder affecting 1:35,000- 1:50,000 live births. There is a loss of genetic material on the short arm of the 5th chromosome. It causes severe to mild cognitive and developmental delays. There is no cure.
The purpose of the Virtual Walk is to raise awareness to support 5p‐ Society outreach and educational initiatives. It is also a great way to spread awareness in our community.
All donations must be received by May 6, 2015.
Thank you for your support for Caroline and others with Cri du Chat Syndrome.
Funds Raised
$0 / $100 (0%)
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Non-Profit Information
About Virtual 5k for 5p-
Each year in the United States, approximately 50 to 60 children are born with 5p- Syndrome (five p minus), also known as Cat Cry Syndrome or Cri du Chat Syndrome. 5p- Syndrome is characterized at birth by a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of chromosome number five that is missing in these individuals. 5p deletion is a spectrum disorder. Founded in 1986, the 5p- Society's mission is to encourage and facilitate communication among families having a child with 5p- Syndrome and also to spread awareness and education of the syndrome to these families and their service providers. As the society continues to forge a path ahead for the awareness, advocacy, and support of our families with Cri Du Chat, we continue to need financial support. The financial support that the society gains will allow more families to be touched positively as our loved ones grow and develop. Your support and participation in the Virtual 5k for 5p- is appreciated! The 5p- Society is a recognized 501(c)3 not-for-profit organization.
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