Event Information
March for Marrow events, which began as Hope, Steps & A Cure 5K Run and Patient & Family Walk in 2010, were organized by a group of patients and families in Los Angeles that are living with bone marrow failure diseases or who have lost a loved one to these rare diseases. Bone marrow failure diseases affect the production of healthy red and white blood cells and platelets:
• Red blood cells carry oxygen to tissues and organs
• White blood cells help fight disease and infections
• Platelets help blood clot to stop bleeding
If the bone marrow "factory" breaks down and fails to keep up with the body’s need for healthy blood cells, the result is called bone marrow failure. Aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH) are bone marrow failure diseases.
Today there are several treatments to prolong and improve the quality of life for patients. March for Marrow events seek to educate the public about the important work that the Aplastic Anemia MDS International Foundation (AAMDSIF) does to inform and educate patients, family members and medical professionals about these diseases, their symptoms and resources available to help them. Please visit www.AAMDS.org.
March for Marrow Walks, which take place every year in different communities across the country, are also fundraising and community building events where patients and their supporters come together to compete at raising as much money as they can for the patient and family services offered free-of-charge by the Foundation. We join together to celebrate and remember wins and losses and to run/walk for a CURE!
To date, we have raised over $1,000,000 for AAMDSIF in Los Angeles. In 2021 the Foundation provided service to 17,745 patients and families; webinars and online learning opportunities to 6,291 viewers; three VIRTUAL Patient & Family Conferences that attracted 1,737 attendees from the US and other countries; patient education materials that were downloaded by over 5,028 patients or family members; and managed 127 monthly support groups.
AAMDSIF continues to make a significant difference in the field of these rare bone marrow failure diseases, providing critical information to 1,200,000 people including doctors, nurses, and research fellows as well as patients, families and caregivers.
Thank you for your support!
In consideration of the acceptance of this registration entry, I assume complete responsibility for any injury or accident which may occur during my participation in this race or while on the premises of this event. I am fully aware of the risks and hazards inherent in participating in the Event and elect to voluntarily participate. I fully realize, waive, hold harmless and covenant not to sue the Aplastic Anemia MDS International Foundation, Inc. the sponsors, and all other persons and entities associated with this event, together with their officers, directors, shareholders, successors and assigns (collectively "sponsors") from all liability, for any and all loss, damage and any and all claims or demands on account of any injury or damage, whether caused by the negligence of all or any of the sponsors or otherwise in connection with my participation in the Event. I agree to the use of my name and photograph in broadcasts, newspapers and other media without compensation. In the event the Event is delayed or cancelled for any reason, including but not limited to: fire, disaster, flood, acts of God or the elements (including rain and hail), or any other cause beyond the control of the sponsors, there shall be no refund of the entry fee or any other costs. It is my express intent that this Release and Waiver of Liability Agreement shall bind the members of my family and spouse, my heirs, assigns and personal representatives, and shall be governed by the laws of the State of California. Enter waiver text here.
